Opportunity Information: Apply for HRSA 19 097
The Newborn Screening State Evaluation Program (HRSA 19-097) is a discretionary grant opportunity from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), focused on strengthening how states evaluate and improve their newborn screening systems. The central aim is to help states collect and use better data so they can measure how well newborn screening works in practice, not just whether tests are performed. In particular, the program is designed to build state-level capacity to assess and report on key parts of the screening-to-care continuum, including how quickly screening happens, how efficiently results are acted on, how reliably families receive follow-up and counseling, and whether infants ultimately get appropriate health care services. The larger public health goal is to reduce illness and death associated with heritable disorders by ensuring affected newborns are identified and treated as early as possible.
A major feature of this program is its emphasis on standardized "quality indicators" developed through the HRSA-funded Newborn Screening Technical Assistance and Evaluation Program (NewSTEPs). Applicants are expected to collect and submit data aligned to these indicators so screening performance can be evaluated consistently over time and compared meaningfully. The indicators cover practical, operational steps inside a newborn screening system, such as the proportion of eligible newborns who are screened, rates of false positives and borderline results, how quickly specimens are collected after birth, how long transport takes from the birth facility to the laboratory, and how rapidly medical intervention begins once a concerning result is identified. Because these measures can be tracked longitudinally, states can see whether process changes actually lead to better performance, and the aggregated data also supports national-level understanding of newborn screening system effectiveness.
The program is framed as a demonstration effort intended to show how systematic data collection and reporting can reveal where screening systems succeed and where they break down. By improving data infrastructure and analytic capacity, states can identify gaps and challenges that may otherwise remain hidden, such as delays in specimen shipment, bottlenecks in laboratory processing, inconsistent communication of abnormal results, or uneven access to confirmatory testing and specialty care. The resulting information is meant to help state programs judge the validity and real-world impact of screening results, including whether infants with heritable disorders are being diagnosed quickly, started on treatment promptly, and connected to appropriate follow-up counseling and longer-term health services. Over time, using these findings to guide quality improvement should lead to better outcomes for children with heritable disorders.
Administratively, this opportunity is a grant (Funding Instrument Type: Grant) under the health activity category, associated with CFDA 93.110. The posting lists an award ceiling of $150,000 and an expectation of around 15 awards. The opportunity was created on March 5, 2019, with an original application closing date of May 6, 2019. Eligibility is described broadly as "Others," with additional eligibility clarification referenced in the full announcement text.Apply for HRSA 19 097
- The Department of Health and Human Services, Health Resources and Services Administration in the health sector is offering a public funding opportunity titled "Newborn Screening State Evaluation Program" and is now available to receive applicants.
- Interested and eligible applicants and submit their applications by referencing the CFDA number(s): 93.110.
- This funding opportunity was created on Mar 05, 2019.
- Applicants must submit their applications by May 06, 2019. (Agency may still review applications by suitable applicants for the remaining/unused allocated funding in 2026.)
- Each selected applicant is eligible to receive up to $150,000.00 in funding.
- The number of recipients for this funding is limited to 15 candidate(s).
- Eligible applicants include: Others (see text field entitled Additional Information on Eligibility for clarification).
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Frequently Asked Questions (FAQs)
What is the Newborn Screening State Evaluation Program (HRSA 19-097)?
The Newborn Screening State Evaluation Program (HRSA 19-097) is a discretionary grant opportunity from the U.S. Department of Health and Human Services (HHS), Health Resources and Services Administration (HRSA). It is focused on strengthening how states evaluate and improve their newborn screening systems, with a particular emphasis on collecting and using better data to assess performance across the screening-to-care continuum.
What is the main purpose of this grant opportunity?
The central aim is to help states build capacity to collect, analyze, and report standardized data so they can measure how well newborn screening works in real-world practice. The goal is to move beyond confirming that tests were performed and instead evaluate timeliness, follow-up, communication, and the connection of infants to appropriate health care services after screening.
What public health problem is this program trying to address?
The broader public health goal is to reduce illness and death associated with heritable disorders by ensuring affected newborns are identified and treated as early as possible. The program supports states in finding and fixing system gaps that can delay diagnosis or treatment.
What parts of the newborn screening process does the program focus on evaluating?
The program is designed to strengthen state-level capacity to assess and report on key parts of the screening-to-care continuum, including how quickly screening occurs, how efficiently results are acted on, how reliably families receive follow-up and counseling, and whether infants ultimately receive appropriate health care services.
What does it mean to evaluate newborn screening "in practice" rather than only confirming tests are performed?
Evaluating newborn screening in practice means looking at operational and clinical performance across the full pathway from specimen collection through intervention and care. This includes measuring timeliness (for example, collection and transport time), system responsiveness (how rapidly abnormal results trigger action), and whether infants actually reach confirmatory testing, counseling, and appropriate medical services.
What are the "quality indicators" mentioned in the opportunity?
The opportunity emphasizes standardized "quality indicators" developed through the HRSA-funded Newborn Screening Technical Assistance and Evaluation Program (NewSTEPs). Applicants are expected to collect and submit data aligned to these indicators so that screening performance can be evaluated consistently over time and compared meaningfully.
Who developed the quality indicators used by this program?
The quality indicators referenced in the grant materials were developed through NewSTEPs, the HRSA-funded Newborn Screening Technical Assistance and Evaluation Program.
What kinds of measures do the quality indicators cover?
The indicators cover practical, operational steps inside a newborn screening system. Examples described in the opportunity include the proportion of eligible newborns who are screened, rates of false positives and borderline results, how quickly specimens are collected after birth, how long transport takes from the birth facility to the laboratory, and how rapidly medical intervention begins once a concerning result is identified.
Why does the program require standardized indicators and data submission?
Standardized indicators allow states to evaluate performance consistently over time and make comparisons that are meaningful. Because the measures can be tracked longitudinally, states can see whether process changes lead to better performance, and aggregated data can support national-level understanding of how effective newborn screening systems are.
How can states use longitudinal tracking of these indicators?
Tracking indicators over time helps states determine whether changes to processes (such as specimen shipping procedures or laboratory workflows) actually improve performance. The program is designed so that states can identify trends, measure progress, and use findings to guide ongoing quality improvement.
What is meant by the program being a "demonstration effort"?
The program is framed as a demonstration effort intended to show how systematic data collection and reporting can reveal where screening systems succeed and where they break down. The expectation is that improved data infrastructure and analytic capacity will make hidden problems visible and actionable.
What types of system gaps or bottlenecks might this program help identify?
The opportunity describes several examples of challenges that better data can uncover, such as delays in specimen shipment, bottlenecks in laboratory processing, inconsistent communication of abnormal results, and uneven access to confirmatory testing and specialty care.
How does improved data infrastructure help newborn screening programs?
By improving data infrastructure and analytic capacity, states can more reliably assess performance, identify gaps, and understand the real-world impact of screening results. This supports decision-making about where to focus quality improvement to reduce delays and strengthen follow-up to care.
What does the opportunity suggest states should be able to assess about outcomes after screening?
The program emphasizes the need to judge the validity and real-world impact of screening results, including whether infants with heritable disorders are diagnosed quickly, started on treatment promptly, and connected to appropriate follow-up counseling and longer-term health services.
How does this program relate to follow-up and family communication?
One of the areas highlighted for assessment is how reliably families receive follow-up and counseling. The opportunity also notes that improved evaluation can help detect issues such as inconsistent communication of abnormal results.
What agency is sponsoring this funding opportunity?
The sponsor is the U.S. Department of Health and Human Services (HHS), Health Resources and Services Administration (HRSA).
What is the funding instrument type?
The funding instrument type listed is a Grant.
What is the activity category for this opportunity?
The opportunity is listed under the health activity category.
What is the CFDA number associated with this program?
The opportunity is associated with CFDA 93.110.
What is the maximum award amount (award ceiling) mentioned?
The posting lists an award ceiling of $150,000.
How many awards are expected?
The posting notes an expectation of around 15 awards.
When was this opportunity created?
The opportunity was created on March 5, 2019.
What was the original application closing date?
The original application closing date listed is May 6, 2019.
Who is eligible to apply based on the posting?
Eligibility is described broadly as "Others," with additional eligibility clarification referenced in the full announcement text.
Where can applicants find more detail about eligibility requirements?
The posting indicates that additional eligibility clarification is provided in the full announcement text.
What kind of data is applicants expected to collect and submit?
Applicants are expected to collect and submit data aligned to the standardized quality indicators developed through NewSTEPs. The intent is to ensure performance can be evaluated consistently over time and compared meaningfully.
What kinds of timeliness metrics are specifically mentioned?
The opportunity specifically mentions measures such as how quickly specimens are collected after birth, how long transport takes from the birth facility to the laboratory, and how rapidly medical intervention begins once a concerning result is identified.
Does the opportunity mention tracking false positives or borderline results?
Yes. The indicators described include rates of false positives and borderline results as part of evaluating system performance.
How is the program expected to support quality improvement?
The program is intended to generate actionable information that states can use to guide quality improvement. By identifying where the system breaks down (for example, shipping delays or communication issues), states can target process changes and then use longitudinal indicator data to see whether those changes improve performance.
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